For patients seen in multiple clinics or multiple times, the first survey answers were analyzed. sharing sensitive information, make sure youre on a federal 13. The data collected suggests that patients from medically complicated clinics were more reliant on therapies and were more affected by the inability to access it. This assessed whether the directors deemed the Pandemic Intake questionnaire helpful in the care of patients during the pandemic, and how they addressed COVID-related concerns. 2023 CBS Broadcasting Inc. All Rights Reserved. Over 4,000 patients (Figure1) were seen across these programs, during the time of data collection (May 2020 through December 2020). The statistical model was significant and correctly categorized 96% of patients, 2 (14, N=1,644)=43.7, p<0.001). Helps to reduce your risk of developing coronavirus and makes your symptoms milder if you do Coronavirus (COVID-19): Treatments How to access coronavirus treatments if you're at highest risk Coronavirus (COVID-19): Longer-term effects (long COVID) Learn about the symptoms of long COVID and how you can manage them Rehabilit. Inaccessibility to services like physical, occupational, and speech therapies can result in a decline in patient health (6). Murphy A, Pinkerton LM, Bruckner E, Risser HJ. More information and support. Race and age were significant predictors; sex and clinic type were not. Pediatric Post COVID-19 Rehabilitation Clinic, ConferenceReservations@KennedyKrieger.org, Hospital Education Liaison Program (HELP), Maryland Center for Developmental Disabilities, Have traveled outside the U.S. in the past 21 days. COVID-19 Testing. October 12, 2021 / 11:03 PM Development and implementation of the pandemic intake questionnaire at the institute during the COVID-19 Pandemic. Attestation to vaccination and symptom screening should be included in registration. This funding was made available by the American Rescue Plan. Twenty-three percent (n=200) of guardians of White children indicated increased difficulty accessing therapies; Black and African American respondents (14%) were less likely to report difficulty accessing therapies. Add an answer. 2021 CBS Broadcasting Inc. All Rights Reserved. The Pandemic Intake questionnaire content was implemented beginning in April of 2020 until December 31, 2020 (Figure1), and included items specific to perceived risk of contracting COVID-19, changes in mood, behavior, sleep, appetite, and access to medical care. Questions used a three point Likert-like scale and guardians indicated if they agreed with the item statement (yes), were not sure (unsure), or disagreed with the statement (no). This poses an issue for patients struggling to access telehealth services (6), specifically patients from underserved populations (7). Table 4. doi: 10.1111/jpc.15285, 4. (2021) 11(9):1139. doi: 10.3390/brainsci11091139, Keywords: pandemic (COVID-19), pediatrics - children, rehabilitation, SARS CoV 2, neurodevelomental disorders, Citation: Vedmurthy P, Murray C, Chen B, Asiedu A, Baranano K, Bay M, Belcher H, Burton V, Conlon C, Fine A, Gill R, Harris J, Hart K, Inches S, Johnson J, Lance E, Lipkin PH, Menon DU, McIntyre T, Rajaprakash M, Recio A, Singer HS, Smegal L, Smith-Hicks CL, Vernon H, Wilms Floet AM, Wong J, Yelin K, Leppert MLO, Zabel TA and Comi AM (2022) Pandemic intake questionnaire to improve quality, effectiveness, and efficiency of outpatient neurologic and developmental care at the Kennedy Krieger institute during the COVID-19 pandemic. This study reports worsened sleep in patients at CARD; previous research found patients with ADHD and ASD to report high rates of delays in bedtime, decreased sleep duration and increased sleep disorders (18). Reports of worsening in behavior during the pandemic was significantly different across race and ethnicity (p=0.002), type of clinic (p=0.014), and across age (p=0.047). We exist to make sure it doesn't. To contact us, please call 1-800-344-4867 or complete the information below with as much detail as . Franciosi EB, Tan AJ, Kassamali B, Leonard N, Zhou G, Krueger S, et al. 4 Central Florida Heart Care, Maitland, FL, United States. Any product that may be evaluated in this article, or claim that may be made by its manufacturer, is not guaranteed or endorsed by the publisher. Binary logistic regression identified significant predictors of guardian response; the statistical model included sex, age, race, and clinic type as covariates. 2022 Vedmurthy, Murray, Chen, Asiedu, Baranano, Bay, Belcher, Burton, Conlon, Fine, Gill, Harris, Hart, Inches, Johnson, Lance, Lipkin, Menon, McIntyre, Rajaprakash, Recio, Singer, Smegal, Smith-Hicks, Vernon, Wilms Floet, Wong, Yelin, Leppert, Zabel and Comi. Contact Us. The studies involving human participants were reviewed and approved by Johns Hopkins Institutional Review Board. For Help and Hope call 1-877-8-HOPENY or text HOPENY. official website and that any information you provide is encrypted The Center for Development and Learning (CDL) sees patients diagnosed with cognitive impairments, anxiety, attention deficit hyperactivity disorder, learning disorders, language delays and social difficulties. Clinic type, age and race were significant predictors; sex was not. . The statistical model was significant and correctly categorized 96% of patients, 2 (14, N=1,644)=43.7, p<0.001). Disabil Health J. You also have the option to opt-out of these cookies. 1 answer. There was a 0.998 cumulative decrease in reports of worsening behavior with each increase in age by month (Table2). In a survey of medical providers, five out of six program directors who received the responses to this survey found this questionnaire helpful in caring for their patients. The clinics noted as medically more complicated include: Neurogenetics, Neurology, Spinal Cord Injury, Sturge-Weber syndrome, Epigenetics, Metabolism and the Sickle Cell clinic. Coronavirus (COVID-19) pandemic | Australian Government Department of 7 Articles, This article is part of the Research Topic, https://doi.org/10.3389/fresc.2022.934558, https://www.frontiersin.org/articles/10.3389/fresc.2022.934558/full#supplementary-material, Creative Commons Attribution License (CC BY). Waiting for a 111 callback? Robert F. Kennedy Jr. said the COVID-19 vaccine is the - Poynter To be eligible for the HealthChoice COVID-19 Gift Card Program you must: Be enrolled in HealthChoice. doi: 10.1016/j.jad.2020.08.001, 17. This assessed whether the directors deemed the Pandemic Intake questionnaire helpful in the care of patients during the pandemic, and how they addressed COVID-related concerns. Health Departments: Information on COVID-19 | CDC Moynihan R, Sanders S, Michaleff ZA, Scott AM, Clark J, To EJ, et al. There are no coronavirus (COVID-19) restrictions in the UK. For non-urgent health advice: call your GP; visit a pharmacy Regarding sleep, 11.7% (n=191) indicated the child's sleep worsened during the pandemic (Table3). Responses were analyzed in relation to sex, age, race/ethnicity and clinic. Click the link below to access the federal . Kennedy Krieger Institute offers COVID-19 testing at its schools, Video Series: Off the Record with Sloane Brown, Off the Record with Sloane Brown: Jack Mitchell, Mitchell-Wiedefeld Funeral Home, YOUR CALIFORNIA PRIVACY RIGHTS/PRIVACY POLICY, Elliott Schreur | Md. In the medically more complicated clinics (Table3), patients were more likely to be treated with several medications simultaneously, have been hospitalized for seizures, surgeries, and other medical issues, and were more likely to be dependent on medical equipment such as wheelchairs, ventilators, and pumps. Kennedy Krieger has one of the only clinics in the country that treats children and young adults dealing with what's known as "long COVID," when some suffer from symptoms long after the initial . The Institute's Health Information Management department received the completed questionnaires through automated emails from Qualtrics, and uploaded them to the EPIC health management system. Program directors made more appointments available and provided COVID-19 education to their patients. Telemedicine is a safe and satisfactory alternative to in-person appointments and encourages patients to discuss their concerns relating to COVID-19 risk (13). If you need information on the operation of your . Impact of COVID-19 pandemic on utilisation of healthcare services: a systematic review. We hypothesized that clinicians providing medical care during the pandemic would be assisted by this information. Most providers reported that changes in sleep (66.7%) and behavior (66.7%) were the most frequent COVID-19 related concerns for their patients. This de-identified database was stored on a secure Institute shared drive, and analyzed within IBM SPSS 27. The data collected suggests that patients from medically complicated clinics were more reliant on therapies and were more affected by the inability to access it. They face significant disruptions to home and school routines, that can cause further declines in health outcomes, and limitations in accessing necessary healthcare and educational services (2, 3), which can further exacerbate their neurodevelopmental impairments. Kennedy claimed that the COVID-19 vaccine is the deadliest vaccine ever made according to deaths reported in VAERS. While the overall process of disseminating questionnaires was the same across programs, there were differences in the details of execution, like, in how many days before the clinic appointment the questionnaires were sent, which may have impacted participation. (2020) 95(2):7784. Clinic type was a significant predictor; age, sex, and race were not. This study has important limitations. The COVID Care@Home team includes nurses who are available to provide advice on symptom management, and assist patients with engagement . The guidelines include best practices from Kennedy Krieger's Pediatric Post-COVID-19 Rehabilitation Clinic, which opened in fall 2020 and has treated more than 100 pediatric patients with . All authors contributed to the article and approved the submitted version. Requests for Accommodation for MN Community Testing and Vaccination Sites. This is an open-access article distributed under the terms of the, GUID:CE3DC7E1-E533-492A-963C-FBB9BAFED580, GUID:33FE3EAD-8EC4-4500-A342-7D5CC5C325EC, pandemic (COVID-19), pediatrics - children, rehabilitation, SARS CoV 2, neurodevelomental disorders, Intellectual and developmental disability and COVID-19 case-fatality trends: triNetX analysis. Most people can manage COVID-19 at home with support from their GP. (2020) 95(9):e1257e66. Evolving healthcare delivery in neurology during the coronavirus disease 2019 (COVID-19) pandemic. If you have any symptoms of "long COVID" or suspect anything, doctors at Kennedy Kreiger recommend reaching out to your child's pediatrician to see if they can start to help out your child and figure out if they might be experiencing "long COVID. The Neurology clinic sees patients diagnosed with brain injury, leukodystrophies, Rett syndrome, stroke and epilepsy. Providers increased availability of in-person and virtual therapies and visits and made referrals for additional care to address this. The Kennedy Krieger Institute approaches neurodevelopmental disorders through a multi-professional treatment lens, allowing for expansive integration of changes and improvements in the quality of care. Ethnicity and clinical outcomes in COVID-19: a systematic review and meta-analysis, Telerehabilitation in the age of COVID-19: an opportunity for learning health system research. Bruni O, Breda M, Ferri R, Melegari MG. Changes in sleep patterns and disorders in children and adolescents with attention deficit hyperactivity disorders and autism spectrum disorders during the COVID-19 lockdown. Results: Analysis included responses from 1643 guardians of pediatric patients (mean age 9.5 years, range 021.6 years). kycovid19.ky.gov - kycovid19.ky.gov - NIC Inc. Center for Autism & Related Disorders (CARD), Helped to assess family stress and also patient's behaviors due to Covid-19, Increased referrals of families for training children with ASD to tolerate masks. At that point, the Kennedy Krieger Institute was ready to give the go-ahead to welcoming thousands to its biggest fundraiser the Festival of Trees at the Maryland State Fairgrounds. By: Daily Record Staff May 5, 2021. Data from May-December 2020 were merged with demographic information of patients from 10 clinics (Center for Autism and Related Disorders (CARD), Neurology, Epigenetics, Neurogenetics, Center for Development and Learning (CDL) Sickle Cell, Spinal Cord, Sturge-Weber syndrome (SWS), Tourette's, and Metabolism). AC, ML and TZ oversaw all aspects of the study. Telemed J E Health. Twenty percent of guardians of CDL patients reported a worsening of behavior, while guardians of CARD patients (33%) were 2.05 times more likely to report worsening behavior, and respondents from the Spinal Cord clinic (3%) were 0.12 times less likely to report worsening behavior. Kennedy Krieger Institute's pediatric long Covid clinic to expand Covid . We successfully implemented a pre-visit Pandemic Intake questionnaire to quickly and systematically inform provider awareness of COVID-19 related patient concerns; the majority of program directors reported that this information helped them provide optimal care. AC, ML, TZ, PV, HB, CM, BC, EL, MR, DM, and PL contributed to conception and design of the study. There was a 1.003 cumulative increase of reports in worsened mood with each increase in age by month (p=0.01). *denotes statistical significance in table3. All claims expressed in this article are solely those of the authors and do not necessarily represent those of their affiliated organizations, or those of the publisher, the editors and the reviewers. Some people don't finish that. Out of all respondents, 2.9% reported that their child had asthma/other lung disease and 0.2% reported their child having heart disease at the time of completing the questionnaire. Race, age, and clinic type were significant predictors; sex was not. Kennedy Krieger Clinic Treats Young Patients With 'Long COVID' Who Are The authors declare that the research was conducted in the absence of any commercial or financial relationships that could be construed as a potential conflict of interest. Race and age were significant predictors; sex and clinic type were not. "We have a program that reaches out to school nursing so and provides that education so that there can be that bridge between parents kids and the school," said Rybczynski. Makary M. Risk factors for COVID-19 mortality among privately insured patients. Mucalo L, Brandow AM, Dasgupta M, Mason SF, Simpson PM, Singh A, et al. Front. Regarding appetite, 4.98% (n=81) reported their child experienced worsened appetite. Continue to practice everyday preventive actions now: Kennedy Krieger Institute scheduled events happening at Kennedy Krieger, or in other locations, may be impacted by changes to the public health environment. Please send an email to KYcovid19@ky.gov The statistical model correctly classified 95% of the sample, 2 (14, N=1,627)=28.2, p=0.013). Kennedy Krieger Institutewill begintesting consented students forCOVID-19in Mayat all four of its schoolsas part ofastudy that will helptodeterminethebeststrategiesforthe safe return to in-person learning forstudents with disabilities. Please note that the toll free number is a 24/7 number. 134 COVID. MS stops people from moving. Department of Labor. They face significant disruptions to home and school routines, that can cause further declines in health outcomes, and limitations in accessing necessary healthcare and educational services (2, 3), which can further exacerbate their neurodevelopmental impairments. No use, distribution or reproduction is permitted which does not comply with these terms. Where to get help - coronavirus (COVID-19) - Queensland The studies involving human participants were reviewed and approved by Johns Hopkins Institutional Review Board. The complex, inter-related factors, unique to patients with neurodevelopmental disorders influence the impact of the COVID-19 pandemic. There was a 0.993 cumulative decrease in reports of difficulty accessing therapies with each increase in age by month. Working at Kennedy Krieger Institute in Baltimore, MD - Indeed Reports for difficulty in accessing surgeries decreased over time. These cookies do not store any personal information. COVID-19 health information | SA Health Herman C, Mayer K, Sarwal A. Scoping review of prevalence of neurologic comorbidities in patients hospitalized for COVID-19. Guardians of Black and African American (14%), Other (14%), and Asian (15%) patients were 0.480.53 times less likely to report worsening in mood compared to White respondents (24%) (Table2). Asked March 11, 2022. Regarding sleep, 11.7% (n=191) indicated the child's sleep worsened during the pandemic (Table3). In partnership with the Maryland State Department of Education andlocalschoolsystems, Kennedy Krieger School Programs serve nearly 500 public school students with disabilities from more than half of the school districts in Maryland. Get the inside scoop on jobs, salaries, top office locations, and CEO insights. COVID-19 Testing | Department of Health The COVID-19 pandemic uniquely affects patients with neurologic and developmental disabilities at the Kennedy Krieger Institute. To register, click here. Saturday, Sunday and public holidays from 9am to 5pm (Sydney time). She had to take the semester off from school and tried to figure out what was wrong but was not getting far. These patients are at increased risk of co-morbidities, increasing their risk of contracting COVID-19. To assess the utility of the Pandemic Intake questionnaire, a provider feedback survey was developed and sent to the seven program directors. Call the Coronavirus Hotline on 1800 675 398 if you need help to report a rapid antigen test (RAT) or if you have any questions about COVID-19.
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